Detalhe da pesquisa
1.
Recruitment and retention challenges and strategies in randomized controlled trials of psychosocial interventions for children with cancer and their parents: a collective case study.
Eur J Pediatr
; 182(10): 4683-4706, 2023 Oct.
Artigo
em Inglês
| MEDLINE | ID: mdl-37561196
2.
The intersectionality of gender and poverty on symptom suffering among adolescents with cancer.
Pediatr Blood Cancer
; 68(8): e29144, 2021 08.
Artigo
em Inglês
| MEDLINE | ID: mdl-34061435
3.
Effect of FAmily CEntered (FACE®) Advance Care Planning on Longitudinal Congruence in End-of-Life Treatment Preferences: A Randomized Clinical Trial.
AIDS Behav
; 24(12): 3359-3375, 2020 Dec.
Artigo
em Inglês
| MEDLINE | ID: mdl-32399799
4.
"Living life as if I never had cancer": A study of the meaning of living well in adolescents and young adults who have experienced cancer.
Pediatr Blood Cancer
; 67(10): e28599, 2020 10.
Artigo
em Inglês
| MEDLINE | ID: mdl-32686240
5.
Shared spiritual beliefs between adolescents with cancer and their families.
Pediatr Blood Cancer
; 67(12): e28696, 2020 12.
Artigo
em Inglês
| MEDLINE | ID: mdl-32918519
6.
The influence of religious beliefs and practices on health care decision-making among HIV positive adolescents.
AIDS Care
; 32(7): 896-900, 2020 07.
Artigo
em Inglês
| MEDLINE | ID: mdl-31535560
7.
"Can you tell me why you made that choice?": A qualitative study of the influences on treatment decisions in advance care planning among adolescents and young adults undergoing bone marrow transplant.
Palliat Med
; 34(3): 281-290, 2020 03.
Artigo
em Inglês
| MEDLINE | ID: mdl-31659933
8.
The Effect of FAmily-CEntered (FACE®) Pediatric Advanced Care Planning Intervention on Family Anxiety: A Randomized Controlled Clinical Trial for Adolescents With HIV and Their Families.
J Fam Nurs
; 26(4): 315-326, 2020 11.
Artigo
em Inglês
| MEDLINE | ID: mdl-33283612
9.
Quality of life of persons living with HIV and congruence with surrogate decision-makers.
Qual Life Res
; 28(1): 47-56, 2019 Jan.
Artigo
em Inglês
| MEDLINE | ID: mdl-30219937
10.
A randomized clinical trial of adolescents with HIV/AIDS: pediatric advance care planning.
AIDS Care
; 29(10): 1287-1296, 2017 10.
Artigo
em Inglês
| MEDLINE | ID: mdl-28359212
11.
The Role of Religiousness/Spirituality in Health-Related Quality of Life Among Adolescents with HIV: A Latent Profile Analysis.
J Relig Health
; 55(5): 1688-99, 2016 Oct.
Artigo
em Inglês
| MEDLINE | ID: mdl-27071797
12.
Adolescent end of life preferences and congruence with their parents' preferences: results of a survey of adolescents with cancer.
Pediatr Blood Cancer
; 62(4): 710-4, 2015 Apr.
Artigo
em Inglês
| MEDLINE | ID: mdl-25545105
13.
Spiritual well-being among HIV-infected adolescents and their families.
J Relig Health
; 53(3): 637-53, 2014 Jun.
Artigo
em Inglês
| MEDLINE | ID: mdl-23104266
14.
Advance Care Planning for Children With Rare Diseases: A Pilot RCT.
Pediatrics
; 2024 May 03.
Artigo
em Inglês
| MEDLINE | ID: mdl-38699801
15.
An exploratory study of HIV+ adolescents' spirituality: will you pray with me?
J Relig Health
; 52(4): 1253-66, 2013 Dec.
Artigo
em Inglês
| MEDLINE | ID: mdl-22258733
16.
Examining the Cultural Appropriateness of Advance Care Planning Tools for Adolescents and Young Adults With Cancer: An Example of Cross-Cultural Adaptation of the Voicing My CHOiCES Tool.
Curr Probl Cancer
; 47(5): 101010, 2023 Oct.
Artigo
em Inglês
| MEDLINE | ID: mdl-37716878
17.
Special Issue: Psychosocial Considerations for Children and Adolescents Living with a Rare Disease.
Children (Basel)
; 9(7)2022 Jul 21.
Artigo
em Inglês
| MEDLINE | ID: mdl-35884083
18.
The Transition to Adulthood for Youth Living with Rare Diseases.
Children (Basel)
; 9(5)2022 May 12.
Artigo
em Inglês
| MEDLINE | ID: mdl-35626888
19.
Family-Centered Advance Care Planning: What Matters Most for Parents of Children with Rare Diseases.
Children (Basel)
; 9(3)2022 Mar 21.
Artigo
em Inglês
| MEDLINE | ID: mdl-35327817
20.
An Intervention in Congruence for End-of-Life Treatment Preference: A Randomized Trial.
Pediatrics
; 149(5)2022 05 01.
Artigo
em Inglês
| MEDLINE | ID: mdl-35425986